Thursday, September 6, 2012

Healing and fighting...

In May, I finally fell through the doors of an LLMD, one I had chosen, one I knew would help me. And he has been. I am more functional every day. I am immensely grateful. Right now, I am also immensely angry.  I learned from a friend and fellow patient of his today that the records of all his Lyme patients have been subpoenaed.  I am frightened for him. He gives so much, from his small office. I am worried for his staff. I am, of course, worried and frightened for myself. And I feel violated. *My* records are in there. *Mine.*  My friend's, too. Maybe yours. I wish I knew how to help him. I wish this disease and the bizarre agenda that comes with it did not render us all, patients and caregivers, at some level, powerless. No pithy ending here, just anger and frustration.  This is wrong.

6 comments:

jk said...

yikes!!! do you mind saying what state your lyme doc is in? terrifying to say the least. i hope they leave him/her alone and let them continue their important work. very sorry...

Karen M. said...

I'd rather not identify him, and revealing the state probably would. If he wants to be public about this, I'm sure he will. Task for the day for me (or the next few days. Just started a new antibiotic, so energy is limited) is to find out which agency precisely issued those subpoenas and what their agenda is. I mean, we know that in general terms, but if there was a complaint, that would be helpful info, you know?

jk said...

I'm worried it might be my doc, since i heard they are under scrutiny too. i live in a different state than the office, so i wonder if i will get a supoena... so wrong. my doc has better thins to do. lives to save.

Beth Anne said...

How frustrating! When will this stop?!

Alix said...

The fact that these investigations are ongoing and many of our LLMDs are at risk for *helping* us is beyond imagination. Thank you for keeping us updated Karen.

Sharon Tubbs said...

I'm not sure but maybe you could call a lawyer (usually a first time free consultation) and see if you could fight the subpoena as a group. All the patients as one group since our medical records are supposed to be confidential except under very strict conditions. Doesn't cost any money to ask anyway. it would be called something like a civil action suit or something like that. Could even call the ACLU (American civil liberty union). I am being tested for chronic lyme myself right now and am pretty sure this is gonna affect me in the short future. Maybe if all of us join together like with erin brokovitch we could get something done.